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December 02, 2009

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janeharris

Sue, Thank you. I was certainly not in the first wave of hospice pioneers, but I was in the second wave of hospice pioneers in the U.S. We were a pilot of Blue Cross Blue Shield of Michigan(mandated at the automotive bargaining table by UAW) My personal fight was to get bereavement included.Tho the international principles of hospice care mandated bereavement to be included, the third party payers here did not want to include it. It warms the heart to hear the importance of grief counseling to be accepted and known. Good job, Sue. I had two good friends die of serious illnesses after the death of a child. In my mind unresolved grief was a contributing factor.

Claudia

Thanks for this. Surely at the end of life, relationships are what matter most, and you gave your friend the wonderful gift of not shrinking from a friendship with her even though it was difficult. Amen to your thoughts on hospice. I have lost loved ones both with hospice and without it. There is no comparison. We can only hope that hospice care becomes the norm whenever it is appropriate.

Darlene Sabella

What an awesome article, I could feel your heart as you wrote this post. I love the picture, I also lost my youngest cousin from cancer this summer and it makes me want to call her and talk to her. Thank you for sharing this private moment with us.

Devon

I feel like I can take a really great message from this, not to be afraid! Some times I feel hesitant to embark on a new experience by myself, but it's important to remember that death is the most personal experience a person could have. If we remember brave people like Amy then it will inspire us all to not to be afraid of taking on challenges alone. Also, to be courageous and ask others for help in a time of need. I'm sorry I never got to meet Amy.

Devon

I feel like I can take a really great message from this, not to be afraid! Some times I feel hesitant to embark on a new experience by myself, but it's important to remember that death is the most personal experience a person could have. If we remember brave people like Amy then it will inspire us all to not to be afraid of taking on challenges alone. Also, to be courageous and ask others for help in a time of need. I'm sorry I never got to meet Amy.

Sue Leonard

She was an amazing woman, with amazing spirit - throughout her illness, she was always more concerned about how others were feeling than herself. I had always been very uncomfortable around those with terminal illnesses and there was never a moment that I felt uncomfortable with her. She made it easy for me!!

My last visit was about 24 hours before she left us, and I didnt think she knew I was there. (she was on morphine) I was rubbing her arm and telling her what a good friend she had been. I went to leave and suddenly she tried sit up and she said very audibly "Where are you going?" Which throughout her life she always would say, if I left the room when she was in my presence. Then I knew, she knew I was there.

Tim

Sue,

Tell me what you and Amy did during those last few moments together, I am very intrigued by this post! I seldom wonder what things will I do if something were to occur like that, making the bucket list so to speak is hard for me at such a young age, there is so much I have yet to do. I'm 28 by the way. Kudos to you for standing by your promise.

Tim

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